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Patient rights are a reflection of human rights. The human right movement has gathered importance in the world since 1945, when, on 10 December 1948, the Universal Declaration of Human Rights was adopted. This was followed, on 4 November, 1950, by the signature of the European Convention of Human Rights. The rights of the patients, as specific human rights became recognized throughout the European region only in the past two decades.
Especially important was the European
on the Rights of Patients, held in Amsterdam on 28-30 March 1994
under the auspices of the WHO Regional Office for Europe (WHO-EURO), and
hosted by the Government of the Netherlands, which was attended by some 60
persons from 36 Member States. The purpose was to define principles and
strategies for promoting the rights of patients, within the context of the
health care reform process underway in most countries in Europe.
Access to patient files is secured by Article 18 of the Comment 34 to Article 19 (2) International Covenant on Civil and Political Rights, Article 12 (b) (iv)General Comment 14 International Covenant on Economic, Social and Cultural Rights.
Patients rights and their foundation in several European countries are described here:
|Organization||Name with Link||Translation|
|EU, 1979||Charter of the Hospital patient: http://www.hope.be/07publi/publoth/Hospchart.htm. Continuation?|
|WHO, 1986||Ottawa Charter for Health Promotion: http://www.euro.who.int/AboutWHO/Policy/20010827_2||Deutsch|
|WHO Europe, 1994||Declaration on the promotion of patients' rights in Europe- Amsterdam March 1994: http://www1.umn.edu/humanrts/instree/patientrights.html|
|WHO Europe, 1996|
|Council of Europe, 1996||The 5th Conference of Health Ministers: "Social challenge to health : equity and patients rights in the context of health reforms": http://www.social.coe.int/en/qoflife/publi/warsaw.htm|
|Council of Europe - ETS no. 164, 1997||Convention for the Protection of Human Rights and Dignity of the Human Being with regard to the Application of Biology and Medicine. Convention on Human Rights and Biomedicine||Deutsch|
|WHO Europe, 22-23 April 1999||Patients’ rights and citizens’ empowerment, Copenhagen, Denmark 22-23 April 1999. European network for patients' rights: http://lists.essential.org/med-privacy/msg00294.html: "Patients consistently report that their opinions are not adequately considered and that their rights are often violated," said Dr Mikko Vienonen, regional adviser at the WHO's regional office for Europe.|
|Council of Europe, 2000||Recommendation Rec (2000) 5 on the development of structures for citizen and patient participation in the decision-making process affecting health care: http://www.social.coe.int/en/qoflife/recomm/R(00)5.htm|
|EU, 2001||European Health Forum: http://europa.eu.int/comm/health/ph_overview/health_forum/open_forum_en.htm|
|EU, 2006||Health-EU Portal: http://health.europa.eu/|
|Country||Name with Link||Translation|
|Netherlands, 1994||Dutch Medical Treatment Act 1994: http://home.planet.nl/~privacy1/wgbo.htm|
||Patient´s Rights Act: http://waml.haifa.ac.il/index/reference/legislation/israel/israel1.htm|
|Lithuania, 1996||Law on the Rights of Patients and Damage Done to Patients: http://www3.lrs.lt/c-bin/eng/preps2?Condition1=111935&Condition2=|
|Iceland, 1997||Lög um réttindi sjúklinga: http://www.althingi.is/lagas/123a/1997074.html||English|
|Latvia, 1997||Law of Medicine (=The law on medical treatment): http://home.broadpark.no/~wkeim/files/Latvia_The_law_of_Medicine.htm|
|Hungary, 1997||Rights and Obligations of Patients (According to Act CLIV of 1997 on Health): http://www.eum.hu/english/CLIV/CLIV-main.html. The Szószóló Foundation supports patients rights.||Hungarian|
|Greece, 1997||Law 2519/21-8-97|
|Denmark, 1998||Lov om patienters retsstilling, LOV nr 482 af 01/07/1998||English|
|Norway, 1999||Pasientrettighetsloven: http://www.lovdata.no/all/hl-19990702-063.html. Other Norwegian Health laws.||Deutsch, English|
|Georgia, 2000||The Law of Georgia on the Rights of patients|
|France, 2002||LOI n° 2002-303 du 4 mars 2002 relative aux droits des malades et à la qualité du système de santé (1): http://www.legifrance.gouv.fr/WAspad/UnTexteDeJorf?numjo=mesx0100092l#|
|Belgium, 2002||Act on Patients’ Rights, http://www.lachambre.be/documents/1642/15.pdf (in Dutch or French).|
|Switzerland, 2003||Patientenrechtverordnung 1991, Patientenrechtsgesetz ist in Vorbereitung: Hearing: http://www.zh.ch/gd/aktuell/news/presseberichte/news_21_12_00_1a.htm|
|Russia||Principles of The Russian Federation Legislation No. 5487-I: On protection of citizens' health of 22 July 1993 and amendments. (Patients rights in several different laws)||English and Russian|
|Estonia, 2002||Draft of the Act on Patients' Rights PATSIENDISEADUS: http://www.riigikogu.ee/||Estonian|
|Romania, 2003||Law of Patients’ Rights (law 46). Prof. Dr. Dan Tudor Vuza: The Patient’s Family, between the Right to Know the Truth and the Medical Secret|
|Cyprus, 2005||Law 1/2005: PATIENT RIGHTS LAW||Greek|
|Germany, 2013||Patient Rights Law||German|
|Country||Name with Link||Translation|
|France 1974 and 1995||Charte du Patient Hospitalisé: http://www.ch-erstein.fr/charte/chartepatient.html|
|San Marino, 1989|
|UK, (1991), 1997||The Patient's Charter for England: http://www.pfc.org.uk/medical/pchrt-e1.htm|
|Czech Republic, 1992|
|Spain, 1994||Charter of Rights and Duties of Patients|
|Ireland, 1995||Charter of Rights for Hospital Patients|
|Malaysia, 1995||Patient's Charter: http://prn.usm.my/edl/patient.html|
|South Africa, 1996||PATIENTS RIGHTS CHARTER: http://www.hst.org.za/doh/rights_chart.htm|
|Portugal, 1997||Patients' Rights Charter: http://www.dgsaude.pt/carta.htm|
|Honk Kong, 1999||Patients' Charter: http://www.ha.org.hk/charter/pceng.htm|
|Germany, 1999||Charta der Patientenrechte vom 9./10. Juni 1999: http://patientenstellen.de/patientencharta.html|
|Poland, 1999||Information on patients rights by the Ministry of Health (Karta Praw Pacjenta). Polish Patients Association: Letter to Commissioner for Human Rights.|
|Slovakia, 2000||Charter on the Patients Rights in the Slovak Republic (draft): http://www.mdac.info/region/slovakia/index.html|
|Austria, 2001||Vereinbarung zur Sicherstellung der Patientenrechte (Patientencharta): http://www.parlinkom.gv.at/pd/pm/XXI/I/texte/004/I00421_.html|
|Germany, 2001||Experts support patients' rights law: Sachverständigenrat tritt für Patientenrechte-Gesetz ein. The German health system is most expensive in EU, but only under average (World Health Report 2000: Rank 25) in quality of services. Petition der Bundesarbeitsgemeinschaft der Notgemeinschaften Medizingeschädigter e.V. (PDF-format.)|
|Cyprus, 2001||Cyprus Patients Rights' Charter: http://www.activecitizenship.net/documenti/Cyprus Charter Patients' Rights.doc|
|Germany, 2002||Patientenrechtscharta: http://www.krankenkassen.de/gesundheit/arzt-patient/TODO-29/|
|Europe, 2002||Active Citizenship Network: European Charter of Patients Rights http://www.activecitizenship.net/projects/europ_chart.htm|
|Italy||Active Citizenship Network: Italian Charter of Patients Rights http://www.activecitizenship.net/health/italian_charter.pdf|
Six years after the WHO Declaration on the Promotion of Patients’ Rights in Europe (Amsterdam, 1994), more than eight countries (Denmark, Finland, Georgia, Greece, Iceland, Israel, Lithuania, the Netherlands and Norway) have enacted laws on the rights of patients; and four countries (France, Ireland, Portugal and the United Kingdom) have used Patients’ Charters as a tool to promote patients’ rights. (German version). European Journal of Health Law 7: 1-3, 2000: Lars Fallberg: Patients’ Rights in Europe: Where do we stand and where do we go?
PatientNavigation is intended to improve transparency in health care by providing support to patients and their counsellors in finding their way through the tangled web of the health care system. It is not designed as a pilot, guiding and deciding, but as a compass that provides information but leaves the decision with the person concerned.
Many countries in the EU have laws or charters securing the Rights of
Patients. But minimum standards are lacking. In order to give
all citizens in Europe a minimum of patients rights and to keep up with
the international development patients rights should be strengthened in EU
Support Patients Rights, by the following E-Mail to the European Commission (click here):
I support the call to the European Commission for securing the rights of patients.
I a guideline I suggest to use European Charter of Patients Rights http://home.broadpark.no/~wkeim/files/european_charter.htm and the "Recommendation Rec (2000) 5 of the Council of Europe on the development of structures for citizen and patient participation in the decision-making process affecting health care": http://www.social.coe.int/en/qoflife/recomm/R(00)5.htm .
(You may change the text according to your needs).
Many countries in the EU have laws securing the Rights of Patients.
Germany is one of the countries in the EU without such a law. In order to
keep up with the international development a law on patients' rights
should also be adopted in Germany.
Support a German Patients' Rights Law, by the following E-Mail to the German Government (click here):
I support the call to the German Government for securing the rights of patients by law.
I suggest to implement the European Charter of Patients Rights http://home.broadpark.no/~wkeim/files/european_charter.htm and the "Recommendation Rec (2000) 5 of the Council of Europe on the development of structures for citizen and patient participation in the decision-making process affecting health care": http://www.social.coe.int/en/qoflife/recomm/R(00)5.htm .
(You may change the text according to your needs).
Warning: I do not accept any liability that the information on these pages is correct, accurate or up to date!
Please feel free to link this site!
PS: Thanks to all, who gave me this information. Please do not hesitate to mail me if you have one of the "missing links".
Visitor No. since 4. August 2001
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